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RP and Photopsia - Retinitis Pigmentosa Room

About RP and Photopsia

Previous Entry RP and Photopsia Feb. 16th, 2006 @ 11:30 am Next Entry
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Date:February 26th, 2010 12:19 am (UTC)

Re: Photopsia but no RP

I'm sceptical that it's a cognitive problem. I have suffered from this since I woke up seeing flashing lights when I was 5 years old (I am now 45). It's never gotten any better or worse, but is always there - especially when it's dark or against a white background. Any eye doctor I ever mentioned it to or my family just shrugged and looked at me as if I was crazy. I've just learned to live with it and try to ignore it. Finally a few years ago an optician said he had it too and that it was "inner outer retinal misfiring," but there's not much on the Inernet about it. I am very nearsighted (-12 in both eyes), but can thankfully see fine with contact lenses/glasses, despite an astigmatism. It's interesting that you mention migranes as my mother, grandmother and I all get them (infrequently) and they come with aura, but I don't get pain.

Can you see the same moving dots with your eyes open and closed? I can focus on one and see the same thing when I close my eyes, which is very odd.

It's good to know that there are some people out there with this problem, as I thought I was alone. But I'm sorry that I have no advice for curing it.

Christine N.
Date:July 22nd, 2010 03:42 am (UTC)

Re: Photopsia but no RP

I am soooo jealous! I am 20 years old. I have had this problem for as long as I can remember. I used to love watching the colorful swirls at night. I used to have better than perfect vision then. Then, I don't know when it happened, the pattern changed. I see colorful static that I can't focus on. But on the contrary, I developed dark masses that swirl around the peripheral vision, which I focus on by NOT looking at it (they shift when I do). I miss my personal kaleidoscope.

It is nice to know that I am not the only one. I wonder what it is. Mine became very annoying. From a few swirls, the static obstructs my vision as if I am looking through a fine mesh. I really remember how they looked when I was very young. I loved it. They seemed to have their own flight pattern like migrating birds.
Date:July 22nd, 2010 03:45 am (UTC)

Re: Photopsia but no RP

continuing my post above:
I haven't been diagnosed with anything. I haven't been to an optometrist in a while and when I was they checked the usual, which doesn't solve the photopsia issue.

-Tatyana B.
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